Tuesday, January 8, 2008

We are finally back to Des Moines and it feels great to be around things that are a little more familiar. It was so sad to see the look on Elijah's face when we walked down the hall and got to his new room and he saw the "bed". He lost it and was so sad. I really think that he probably thought that since we had gotten in the car that we were on our way home. It didn't take long to get back into the routine of starting a movie and taking vital signs. He was really happy for most of the day. We got settled and then Levi left to go get some things settled at work and as soon as Levi left Elijah got really grumpy and stayed that way for the rest of the evening. Hope this isn't foresight into what it's going to be like once we get home. It will be a whole lot of me, and not much of Levi as he will be very busy trying to catch up at work. Hopefully just being home and not having people in to bug him all the time will make a huge difference. Elijah had another fever at 20:00 that was 100.8, and if it goes up to 101.5 they will have to call the doctor. I hope it will go down because they won't give him Tylenol until it gets up to 101.5. Elijah is doing so good with everything being done to him, he is so big. He has to take about 6-7 syringes full of medication twice a day and it's so hard when he doesn't really understand why he has to. I think he is tired of hearing that it will make him better, especially when he continues to feel crappy. He is complaining more about leg pain and stomach pain which is all normal as long as he is doing chemo. It's a fight to get him out of bed, or even move him around in bed. We talked to the nurse that admitted us a little about how long she thought we would be here and she explained how they do things here. Most of Elijah's treatments will be done outpatient in a different building. They call this "clinic". So really, we won't be back on this floor unless he gets a fever or sickness otherwise. So ultimately she said it's possible that we will stay here until Thursday and then go home and come back on Friday for clinic. I think we will know more after tomorrow when we actually talk to the oncology docs. We didn't see them today because we didn't get here until about 16:30. My mom brought Alivia up for us to see, and it was so nice to see her after so long. She looks like she got taller and my mom said she has caught her standing without holding on to anything. We better not miss her first steps!! She seems very happy, so I know she has been well taken care of. Thanks to everyone who has had her during all of this. It means so much to us that we have enough people willing to care for her, and enough that we haven't had to worry about how she is. Thanks!! Thanks!! Thanks!! That's pretty much all for now, I'll update tomorrow after we talk with the oncology docs and find out some more details. Good Night, can't wait to curl up on our really comfortable beds here!! Love you all!!!

5 comments:

MichaelandKyra said...

I'm so glad I get to see you.

Anonymous said...

I was so glad to hear you were able to come back to Des Moines! Hope Elijah's fever came down and that you get to go home soon! You have such a strong and brave boy! We will continue to keep you guys in our prayers! Keep up the good work Elijah! (and thanks for keeping us updated Amanda & Levi)!

The Ruby Family

Mark, Holly & Boys said...

Ohhh - your post made me just want to hug Elijah. I know he's a strong little dude, but poor guy. And I know it's hard for you guys to see him confused/upset too. I hope being home (soon) will be comforting for all of you. Wish we could be there to do SOMETHING. Of course, you're still in our prayers. Love you guys!

Leslie said...

Yea!!! I am so glad you are back in Des Moines and you are able to see Alivia. We hope Elijah continues to improve and we will check your blog for updates. We miss you guys. Let us know if you need anything. Take Care. Leslie and Gary

Anonymous said...

WE JUST HEARD ABOUT YOUR NEWS AND WANTED TO LET YOU KNOW THAT OUR THOUGHTS AND PRAYERS ARE WITH YOU. IT SOUNDS LIKE ELIJAH IS A LITTLE FIGHTER AND WE'LL FOR HIM TO CONTINUE TO BE. IF YOU NEED ANYTHING, PLEASE LET US KNOW...WE'D BE HAPPY TO HELP.
TAKE CARE,
SHANE, CARRIE,AND LAYLA ARP