Monday, December 31, 2007
Hello there. We had a pretty good night. Elijah was only up a couple of times, but we were all able to get some good solid sleep in. His WBC is down to 1K, which only means one thing NO immune system. Mamma is paranoid!!! The oncology nurse came to talk with us again today and tried to remind us that yes we have to be careful, but he also has to have a normal life. She also reminded us that his own body is his worst enemy as far as bacterial infections are concerned and that it's inevitable that he will get some viral infections like a cold, but as long as he doesn't have a fever we should be pretty safe. They seem to stress the fever thing a lot and she even said that they try to scare parents with that because besides the disease itself, a fever that isn't treated soon enough could be fatal. They transfused some platelets this am because they were going to remove his central line and extubate him. His platelets at 04:00 were 21. Normal for platelets is 150-250. This is what can cause him to bleed and bruise very easily. he has some bruising on his arm just from taking tape off. They removed his central line with him still intubated so that he wouldn't fight and cause it to bleed even more. They had to hold pressure on it for ten minutes and they thought this would be easier if he wasn't awake. The best news today are a couple of things. One, he is now extubated and doing well with it. They did put him on what they call heli-ox. It is helium and oxygen mixed together. The reason behind this is when the two are mixed together if forms a less dense air. Oxygen alone is dense and they explained it by saying the less dense it is the smoother the air flows so that if there is any swelling of the vocal cords or pressure on his trachea, the air will flow through easier. It's easier to understand with hand movements, and from the doctors who know what they are talking about. The second piece of good news is that all of the doctors (pediatric intensivsit and oncology) and nurses seem to be very pleased with all of his labs and numbers. The oncology nurse even said to us that they couldn't ask for any better at this point. There are several of his labs and numbers that are still in a critical range, but they expect that right now. Elijah is still on some sedation medication that they will slowly wean off over the next couple of days. The staff doctor says that we can plan on staying in the PICU for the next 3-4 days, just to make sure he is stable and his airway is okay. They are also going to give him a drug they call methadone which is used for withdrawal. He was on a narcotic for 7 days so he will have to go through withdrawal but this medication should help with that. We are still waiting for poop!! I never thought I would be praying for my three year old to poop, but he really needs to. We had some friends from my work visit today (Amanda, Wendy and Audra). It was nice to see some new familiar faces, thanks for the bag of goodies that was very sweet of you. Thanks to all of you who are willing to help out when we get back. I got a comment from Teresa Giles about the sign-up at church. We can't even begin to say how much we appreciate every one's willingness to serve and help out. It's absolutely incredible and I don't know what we would do without our support system. Thank-you, Thank-you, Thank-you. It really does mean the world to us. Hope I have more good news to report later. Bye for now!!