Friday, December 28, 2007
Time has gone by fast today. Elijah went to surgery and got his port and according to the dr's everything went well with no complications. They are changing his continuous sedation medication to one that's more long term since they anticipate that he will be on the vent for 3-5 days. The switch over is making him agitated and I think it's hard for his body to get use to it, so he has been waking up a lot and kicking his legs and frowning. He wants me to know exactly how mad he is. The nurses are very good about getting him medication ASAP to get him back off to sleep. We just got word back about his 16:00 labs and his WBC is 10.4K. WOW!!!! That's actually within normal range and he hasn't gotten the chemo drugs yet today, so that's all from the two he received yesterday. We talked with the oncology nurse today and went over the first month of treatments and what to expect and side effects to watch for. We didn't get completely done and it was a two hour meeting. We will finish up on Monday. I'm going to be one paranoid mommy!! Any fever at all means a trip to the hospital, among other things. She told u that we could expect him to lose his hair during the third or fourth week. His other labs regarding his kidneys and liver that are working really hard right now to get rid of all the toxic dead cells are slowly on the rise which is expected. They said that the next 72 hours will be the most critical time to watch for things to go south, but they are very efficient and although its a scary thought, we are reassured that he is being very well taken care of. He is still going potty great and that is really important right now. That is the best indication that his kidneys are working. They have to watch though that his urine stays clear, because if it starts to get cloudy that can mean trouble. They put a tube down the other side of his nose so they can start feeding him tonight. So now he has a tube down each nostril. the swelling in his face has gone down, but he is still pretty puffy in his legs and feet which is just from giving him so much fluid. They gave him a dose of lasix (diuretic) last night and by this am the swelling was much better. He has a small incision on his neck from the surgery because they had to open him u in order to watch and make sure the central line went into the correct vein. So he has one on his neck and then one under the port where they inserted it under his skin. We received lots of reading materials from the oncology nurse today, and so everyone in the room (Dad, Tess, Levi and I) have all had our noses in books. I will try to do one last update before bed. Thanks for all the comments and continued prayers!!! We can't say thanks enough.