Sunday, December 30, 2007
I was going to update earlier today, but this network is so bad. I've tried numerous times to login and until now couldn't get anywhere. It has been kind of a hard day because the doctors decided to switch the sedation that Elijah is on, and apparently he is completely immune to that medication. This means he would wake up fairly often and open his eyes looking at us with a great amount of fear. As you can imagine, this has proved hard on us. We would rather not see him intubated at all, but if he has to be, then we would like him to sleep through it. While it is exciting to see him open his eyes, eyes filled with fear are not fun to look into. Well, on to the good news. This morning we looked at the x-rays with the doctors and the mass in his chest is quite a bit smaller. He also had a ct scan to see if the mass is pushing on his trachea (which would delay extubation) and it is not! So we are well on the road to having him breathe on his own. They tell us that tomorrow, they will have a look at his trachea in the OR so that they can make sure that they won't have any problems with the extubation. His white cell count is down to 1.4 which is good, but that also means that his immune system is basically nil. Remember, we would love to see you, just remember that if you come you will have to be anal about washing hands and keeping clean. The labs that they draw for his kidney function have come down, which is excellent because if they would keep going up, then he would need dialysis (which we really don't want). So that is really good news because it means that his kidneys are keeping up the task of flushing all of those dying cells out of his system. They also did a renal ultrasound which gave us results that are completely useless. They told us that the size and shape of the kidneys is normal, as well as having no blockage, but the color of the kidneys is abnormal but they don't know what that means until the pediatric radiologist can tell us (tomorrow). He also had an ultrasound on his belly, and there is fluid there that hopefully when he is up and moving, he will expel on his own. He still hasn't pooped yet and we need him to do that, so this is the first time that we are praying for a dirty diaper :). Also, his spleen and liver are still enlarged, but they say that they are still functioning correctly and look normal except for the size. Hopefully they will reduce in size also as they don't have to work so hard. Another thing that we heard from our oncologist today was that Elijahs count was NOT the highest that he has ever seen, which reassured us. He said he had a child that had a 1.6 MILLION count of cells, so it's good to know that he wasn't the worst case that this oncologist has seen. We are not looking forward to Elijah waking up all night so we will get going and update you guys later. Thanks again to all of our family and friends for the prayers and help that we have received. We are so grateful for the comments that you leave as well, it boost our spirits. We love you all.