Friday, January 2, 2009

Hi all,
just a quick update on Elijah. Still having high fevers and impressive hives. In fact yesterday he had his highest fever yet and got the worst hives he has had yet. All of the nurses were very impressed and he was like a show for everyone to come and see. All cultures are still pending and Dr. Woods said yesterday that Elijah won the award for the week for being the most confusing pt to try and diagnose. When Elijah doesn't have a fever he seems to be in pretty good spirits, but it seems in the last couple of days he has been much more irritable. I feel his pain and I think we are all very sick of being in this hospital. Elijah seemed different yesterday in that he acted more like he wasn't feeling well. He did have more frequent fevers yesterday and higher, but even when he was in between he acted more like he didn't feel well. Dr. Lonzarich (our primary pediatrician) stopped to see Elijah yesterday and brought him some presents. He is so great to us and it was so sweet for him to stop by. Last year he drove to Iowa City on Christmas Day to see Elijah. Dr.Lonzarich was the one we went to see last year on Christmas Eve when this all started. Great guy and even better doctor. a huge thanks to him!! I'm posting a picture of one of the gifts he brought, it is a LEGO dump truck. He told Elijah he had 24 hours to put it all together and sure enough we had it done before bed last night. Dr. Woods did a test to see the level of Elijah's immune system (immuno-globulin). The test came back that his count was low which isn't surprising for a child with Leukemia, however they like to see the number over 400 even for immuno suppressed kids and Elijah's was around 300. A normal level for a healthy person would be between 5oo-600. They are going to give him some immuno-globulin through is IV today to try and boost his count and help him to fight whatever his body is suffering from. They get the globulin from blood products (sort of like platelets). They have to watch him close while they do the 6 hour infusion for reactions, most commonly fever and hives, haha!! I'm guessing they won't be able to tell if the fever and hives, he will most likely get, is a reaction from the infusion or from his illness. We will see what happens. They plan to start this any time now (10:30am). I'm also including a picture of the hives Elijah got yesterday after his high fever, the pictures don't really do it justice but you can get an idea. I'll update more when and if we ever know more. Love you all!!

4 comments:

Leslie said...

You guys are in our prayers. We hope you are able to get this under control and go home soon. I hope you had a nice Christmas at home even if it was short lived. The pictures of the kids are so cute. I can't believe how big Tysa is.

Theresa said...

Silly me, I figured you'd gone out of town to visit relatives or something. I noticed no one has been home for a few days, and I'm sorry it's because of hospital visits. I didn't know about it until I got to work today. Tell Elijah that the neighbors across the street are pulling for him. On this Christmas Eve, I was remembering what one year ago had been like at work for me. How upsetting it was to see such a sick little boy on Christmas Eve. We are praying that things improve for all of you, and that Elijah can get out of that hospital soon!! Let me know if I can do anything for you. And thanks for the Christmas goodies. I got sick so haven't done any baking yet. I didn't want to spread my germs!

Family Scads said...

I can't believe how bad his hives are! I thought the pics were bad that you showed me the other day, but the new pic is worse. Poor kiddo. Yuck! I hate being deemed "confusing!" Figure out what's wrong with our kids already!

I'll call you later this week. I want to bring you up some more food. Let me know what else I can do...please! We'll keep praying.

Sylwia Lipinska Hardman said...

I'm so sorry that you guys are in the hospital again. i 'm so sad for elijah. we'll pray for him to get better